Sunday, February 22, 2009

Living with Punky Bruiser

It' been a minute since I posted last, mainly because we have been sick in rotations...and just in case you were wondering if I did a Typo on my tittle..NOPE. I am not talking about Punky Brewester the character brought to life by Soleil Moon Frye in the '80s,which I happened to love watching; I am talking about my very own Punky Bruiser. Yep life with Punky Bruiser is very challenging, exhausting, but loving and fun. My Punky is in love with purple, it if were up to her the world would be painted in purple with the occasional orange, pink, red and brown to contrast. See she loves these colors and they bring peace to her soul. Why? Well I don't know, and to tell the truth I've tried to figure this one out for 2yrs now and gave up and now I'm simply happy knowing it IS what it IS and it works for her, therefore it works for us. Purple works and so does mixed matched socks and shoes, tops and bottoms, it just does. Flowers and prints, stripes, dots, animals and all seasons mixed. And this has been OK because she never ventured into the world all discomposed. Never until NOW....yep she broke down and wore pink and white stripe panda shirt with blue jeans with green and blue turtle belt, white and red light up Reebok's with black socks with orange Jack o'lantern. EEEEKKK! I freaked, I tried to explain it did not match (she's usually very good about matching), but this particular day she needed to wear these mix matched items. She was going to Occupational Therapy and it's like she knew they'd be trying something new that day and would only be able to handle it dressed as "Punky Bruiser"
She broke every rule in my book and ALAS I now understood others I have seen dressed just like her. I was not going to fight, no point to it really, I explained myself a couple times and she was not "getting it" and instead of starting WWIII, I caved in and decided she needed to be herself.
And you must be wondering about "Bruiser" well that's her our little bruiser, she's tough and gets bruises often. She runs into the world h
ead on full throttle no matter what. And when she's not getting them she's delivering them to our other children. Of course they are always under close supervision, but if you knew her you would see why it only takes her a quick second to overpower a 7yo while she is only 3. In a split second she can spell disaster in a million ways and still look angelic. Please don't get her wrong she is not lacking discipline, nor rules or limitations, they are there and set and time outs and lose of privilege take place,however she doesn't fully "get them". At least not YET. We hope and pray that someday SOON, she will join the others in the understandings of our family dynamics. Until then we keep living life with Punky Bruiser and loving her to the fullest and enjoying her silliness.
This is a glimpse in the life of my 3yo with Turner Syndrome, Developmental delays, ADHD, Anxiety Disorder among a few.

Here she is in her favorite color, purple with her older sister being silly.

Miss Punky B Tutu made by mom

Saturday, February 14, 2009

1 poop, 2 poop, 3 poop, 4!!!

Note: This is a mommy blog, so we might have the occasional mention of body functions. Feel free to ignore if offended...

How much more???? Yep that's ME, busy life with 4 kids, just sitting here waiting till the day I see NO MORE POOP! So I thought I had this all figured out, I mean I had my first born 7yrs ago and before that I had watched kids, many many times. I thought by 3 I would be done with diapers and by 4 wiping others so now what? I have changed diapers, wiped, potty trained, gone thru all these crazy bio waste stages and yet I am still baffled at my youngest.

It was pretty easy to get my oldest potty trained, only to mess him up and make him regress after 2 trips out of state, 1 which was a move and the birth of our 2nd. Pretty soon after we moved we were on track again and I was done wiping that butt. Now our 2nd child, my Diva Melody she was potty trained before 2yrs old, only regress to such extent it took us another 2yrs to get her back (long story). And don't get me started with still hearing the "Moooommyyyyyyyy" yelled from her bathroom when #2 arrives. Yep, still wiping that one, occasionally making deals to put an end to such luck yet. Then we have our 3rd Josslyn, happy go lucky, moody girl. With her you never know what you'll get, and yes she has started going potty, but she is so frequent, she would have to live in the bathroom, nonetheless she makes an effort..and when she doesn't make it, which is her usual she is quick to let us know and bring her supplies. Now our 4th and last Mady (21mo), this is the child that has me scratching my head from the moment I found out I was pregnant. Everything was different, odd and confusing, but that's another story. Mady has taken to join in on the potty training and does pretty well, she announces proudly when she is about to go or in the middle of it, so we rush to help her get there. She has no issues peeling down rather quickly to make her trip to Mr. Potty,we can sit there till what seems like forever and nothing happen, but she is trying and occasionally her tiny body listens to her and obliges.

And now about my confusion and puzzled mind with her...if we do not notice she has pee pee in her diaper, she will strip down and run naked bums around the house as if she has been set free after going. And if we ever not notice immediately she has pooped she does the same and itches herself and we find her in disbelief with "muddy" hands and disgust! You would think after many attempts with same results she would figure out she would get the same outcome..why oh why does she continue to do this?? I never had my other 3 do this
and yet she continues to do this on a daily or whenever the occasion arises. So I am praying that something clicks and she figures out Mr. Potty can handle this better than us and she takes it up to him to handle this situation.
All in all here I am 7yrs of wiping butts and about 4more years to go...all this work and time and experience and I can not even apply this to my resume. Ahh motherhood, done out of love..Priceless!

P.S Any pointers to help my child from getting "muddy" hands??

Just a Tuesday break

So after being pretty active I took a HIATUS from here and most everywhere else. Took time to re-think myself, my family life, my business, my everything. I've been reading, thinking, remembering, organizing thoughts, re-living memories and making new ones. After reading about TUESDAY, my heart sunk, I hurt so bad and it became all to clear how fragile we are and how present our mortality is. I felt the same pain I felt when I got Josslyn's diagnosis of Turner Syndrome, yes I know Josslyn was still very much alive, but that little girl was forever gone. Something had changed, it was still her smile, still her soul, still her love, still her everything, but not the same. But I will talk about that later so you can understand.

This past week was about TUESDAY, thinking about her and her pains and her family pains and joy. She has inspired so many and touched even more. I was not left out of this circle, therfore my family unknowingly was also touched. Thank You TUESDAY for reminding us over and over again, than in an instant our lives can change, we can miss saying good-bye, I Love You's and how much we care. I have loved more and said it, I have cared more and showed it, I have lived more and was thankful for it. I will never again take a single moment in my life, in my kids life for granted, for every second with them has been a gift of love from God.

My prayers are with you and yours....and now revived I'm back from my hiatus.

Go on over to TUESDAYS blog...and leave her mom a message.